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Do you guys ever feel like you’re in pain/discomfort but you can’t identify the pain or how painful it is?
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Anonymous 5d

100% I’ll often accidentally skip a meal, then realize I skipped a meal about 8 hours later when I feel like 💩 and then need to piece togeather the reason I feel like crap is because I haven’t eaten, not some hidden magical reason.

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Anonymous 4d

YES! recently learned the term “interoception”, which refers to the brain’s ability to recognize / communicate around bodily awareness signals like pain, hunger or even tiredness. and apparently a bunch of forms of neurodivergence can interfere with that in various ways

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Anonymous replying to -> #2 4d

side note, the way this pairs with lifelong chronic pain is extremely surreal—I can notice when my body feels “slow & heavy” or “restricted” but I frequently forget to identify that as “pain”

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Anonymous replying to -> #2 4d

i was wondering if this may have been chronic pain from pushing myself for so long or if i’m just reaching because i genuinely can’t tell. my body does feel heavy and restricted and i keep thinking it’s just heavy fatigue (all of the time apparently). and thank you for the info! its def my poor interoception, but i recently realized the pain was coming from my chest specifically. like burning (possibly acid reflux)

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Anonymous replying to -> OP 4d

oh that’s so interesting, I’d considered asking if you might be dealing with some form of chronic pain too but then I figured that was just me projecting… cause yeah, personally my interoception re: pain is fried way worse than any of my other bodily signals, and like you said, I definitely do attribute that to a kind of numbing I developed from having to constantly “push through”

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Anonymous replying to -> OP 4d

I know dealing with the medical system can be kind of a draining & Sisyphean type of ordeal, but if possible, it might be worth bringing that up to your doctor—not just the acid reflux but also the sense of your body feeling overly heavy & restricted all the time

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Anonymous replying to -> #2 4d

i tried to do that and she just gave me pepcid and called it a day. i’m also on ssri’s so i asked if this (the exectutive dysfunction) had anything to do with my meds and she was just like “oh do you need a break?”. that’s it. i’m def going to reach out again though because i have been wondering if this is just acid reflux or if this is a sign of chronic pain. i actually didn’t consider chronic pain being a possible explanation until yesterday and i broke down when i realized that could be it

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Anonymous replying to -> OP 4d

but i kinda just feel the pain in my chest and shoulders right now unless interoception isn’t letting me identify anything else :/ my body does feel achy and restless normally though. sorry if this is tmi i just find it soothing to talk about this to someone that’s also nd

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Anonymous replying to -> OP 4d

oh goddamnit 😭 I’m sorry, that’s frustrating. I always wanna encourage other people to investigate potential signs of chronic illness since I know we often go undiagnosed, but I also realize that the majority of the time, it’s not like someone simply forgets to bring it up to a doctor… cause if doctors weren’t so apathetic and dismissive on average, underdiagnosis wouldn’t be such a problem in the first place 🤦

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Anonymous replying to -> OP 4d

so I do think it’s a good idea to try again or seek a second opinion, but oof, obviously much easier said than done. having to push for care re: an issue your doctor already brushed you off over is lowkey torturous. and I know the prospect of a chronic pain diagnosis is a lot to contend with, but on the bright side, diagnosis can lead to treatment that makes daily life easier & more fulfilling 🙏 (def not TMI either, I like chatting about disability in general)

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