Sidechat icon
Join communities on Sidechat Download
I have so many diagnoses on my chart that doctors have now started to deny me treatment. Claiming I’m “too complicated a case” so that’s super pleasant
upvote 99 downvote

default user profile icon
Anonymous 3w

If they deny you or tell you that any testing is unnecessary or whatever tell that doctor that you want that documented in your chart!! Super important keep a paper trail

upvote 36 downvote
default user profile icon
Anonymous 2w

I’m so sorry, the same thing has been happening to my mother. Funny enough, she’s also got EDS (and other stuff) going on. I hope you find some doctors who care, because there are FAR too many who only want to put in surface-level effort.

upvote 5 downvote
default user profile icon
Anonymous 3w

they can legally do that??? they haven’t to me 😭

upvote 2 downvote
default user profile icon
Anonymous 3w

Yeah I got told that earlier this year. Pretty disappointing but also a weird flex

upvote 1 downvote
default user profile icon
Anonymous 3w

do you have them all tho

upvote 0 downvote
default user profile icon
Anonymous replying to -> #1 3w

Well, what’s happening is that I’m making appointments with new doctors and before the appointment they call and cancel because they don’t wanna take on my case. There’s nothing I can do.

upvote 24 downvote
default user profile icon
Anonymous replying to -> OP 3w

That’s literally not even legal. They cannot refuse to treat a person… I mean it took me a very long time to get multiple diagnoses such as AudHD that I was diagnosed late in life with so that of course took a long while, and I have H-EDS also and it was after the added diagnosis of autism so I think that people didn’t take me seriously. It’s a rare condition. For that condition I went to 17 specialists in less than 3 yrs and they were trying to tell me none of my illnesses were real….

upvote 8 downvote
default user profile icon
Anonymous replying to -> #1 3w

But I was finally diagnosed after seeing a geneticist.. my pcp and cardiologist helped me find them. I’d try to make an appt with your pcp because most referrals would go thru them!

upvote 17 downvote
default user profile icon
Anonymous replying to -> #1 3w

I’ve been trying to get my HEDS officially diagnosed. Every doctor I’ve gone to see in the past like seven years has suggested I have it. But because but they won’t diagnose me. And all the rheumatologist I’ve called say I need to be diagnosed to see them. But I can’t get diagnosed unless I have the appointment.

upvote 9 downvote
default user profile icon
Anonymous replying to -> #1 3w

It’s legal for doctors to turn patients away who they deem to be out of their scope of expertise, among other reasons. It’s ass and unfair to OP in many ways but it’s not illegal.

upvote 15 downvote
default user profile icon
Anonymous replying to -> OP 3w

That’s really messed up I’m so sorry you’re dealing with this. This is maybe a silly question and if it’s annoying I apologize, but have you been able to get a referral to the rheum for another diagnosis? I had some luck getting my foot in the door for PCOS that was difficult to diagnose by getting appointments for other conditions and bringing it up to the doc in person.

upvote 7 downvote
default user profile icon
Anonymous replying to -> #2 3w

They didn’t specify whether they were new patient or not yes taking in a new patient is a different matter and I stand by getting the proper referral which will allow for the other specialists to see you who may be denying you now. They will need the proper diagnosis to make a pcp treatment plan that works for your specific diagnosis, everyone’s different 🤷‍♀️

upvote -2 downvote
default user profile icon
Anonymous replying to -> #1 3w

They did say specifically in their first comment that they were seeing new doctors i e they are a new patient. I don’t disagree with you about referrals though.

upvote 7 downvote
default user profile icon
Anonymous replying to -> #2 3w

Yes, when I called they told me they were taking new patients. They specifically told me I was too complicated

upvote 4 downvote