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challenge: say something neutral-to-positive about self-diagnosis in this group without feeling the need to tack on some kind of bad faith strawman or unnecessarily condescending disclaimer

pixi3dvstsniff3r

Self diagnosing is completely understandable for those who cannot afford proper evaluations sure— but the minute that you start taking away accessibility from others who ARE diagnosed and also need it is when it becomes an issue.
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Anonymous 23h

you are in the right here. it’s mind blowing to think that some disabled people view others with low support needs (LSN) as undeserving of accommodative support… then tack on self-diagnosed (bc it’s $1500 for an assessment in my state) and suddenly it’s mutiny! they’re acting as if ASD or ADHD accommodations are a competitive market or something, as if we’re using the wheelchair accessible seats at venues or the ADA rooms at hotels.

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Anonymous 23h

I’ll start: I never would’ve been able to access the meds I need to function if I hadn’t been confident in pursuing professional diagnosis based on several years of confidence in my own “self-diagnosis” if you don’t live in poverty, if you aren’t on bottom-tier Medicaid, you absolutely cannot fathom what level of institutional gatekeeping some of us are up against. if you aren’t a POC, if you aren’t trans, you have no idea what a massive role bigotry plays in whether we get to access healthcare

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Anonymous 23h

"it's Unfortunate that my peers who I judge as 'high-functioning' are legally entitled to the help they need" is the type of mindset this bad faith attitude leads towards, btw—literally framing it as a bad thing when other neurodivergent people receive accommodations, simply because you personally see them as Undeserving

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Anonymous 20h

I was only diagnosed this year at 27, and it was a “minor” diagnosis (not done with the $1500+ cost of days-long assessment, so no financial support but can use it for work accommodations if needed). Took me years of educating myself, interaction with other Autistic folks, and constantly advocating for myself just to get that. It’s rough. Everyone was undiagnosed at some point, and many can’t even get a simple diagnosis without tons of hoops or costs. It sucks.

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Anonymous 19h

its genuinely just classism at this point…like yeah there are people who are being “trendy” or trying to figure it out, but they arent a problem either. if someone needs an accommodation, they should get an accommodation, end of story

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Anonymous replying to -> OP 23h

I struggled all throughout my schooling, report cards always said “she’s smart but doesn’t apply herself”, I got in trouble for “fidgeting”. ADHD had me fucked up from the start but I didn’t even realize that’s what I was dealing with until after I (barely) graduated high school, then it took me a couple more years of consistently pressing my clinicians until I could even access a goddamn evaluation. thank god I had the confidence to not be manipulated into doubting my experience by my own peers

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Anonymous replying to -> #1 23h

it makes my skin crawl to see most people with an on-file diagnosis had to do some level of “self-diagnosis” to get to that point, and Everyone who’s professionally diagnosed was once a person who still needed those same accommodations / treatments but didn’t have access to them yet. so it’s a truly nauseating absence of basic compassion when someone receives a diagnosis and then starts trying to use that as a seal of authority to encourage discrimination against their own peers

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Anonymous replying to -> OP 22h

not to mention the dismissal or straight up discrimination that many many people experience as adults, let alone as children who cannot advocate for themselves. Girls rarely got diagnosed as children before the 2010s, let alone even evaluated for ASD or ADHD. they’re just labeled “dramatic” or “aloof” and left to fend for themselves until they can learn to advocate for their needs. Once you account for race or ethnicity in this country, it’s even less likely to get assessed and diagnosed…

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Anonymous replying to -> #1 22h

exactly!!! like, literally every form of institutional oppression & bigotry serves as a barrier—usually on multiple levels, not even just transparent biases from clinicians—when it comes to accessing adequate healthcare. it frustrates me really bad when other people are reluctant to recognize this stuff that seems so obvious to me

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Anonymous replying to -> #3 18h

That. Accessibility needs to be made a priority everywhere, not an afterthought in only some ways.

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