Sidechat logo
Download TikTok Instagram X
Sidechat icon
Join communities on Sidechat Download
Chronic Illness icon
Chronic Illness 1w
My hair is literally falling out in clumps, I’m pissing blood again, my migraines are getting worse, my pain is getting so bad that nothing is helping, and I’m so fatigued I’m going insane despite the meds and my rheumatologist is ignoring me 🤪
#butimfinetho#itsneverlupus
comment

12
upvote 61 downvote
default user profile icon
Anonymous 1w

I may be biased due to personal experiences but I swear rheumatology as a field is disproportionately made up of malignant quacks and apathetic bastards

upvote 28 downvote
default user profile icon
Anonymous 1w

sorry if i’m ignorant for asking but isn’t that like medical emergency 911 type of stuff at that point? esp pissing blood and being in pain so much with no success from solutions

upvote 1 downvote
default user profile icon
Anonymous 1w

In all fairness, every chronic illness gets put on rheumatology. We really need a better system.

upvote -3 downvote
default user profile icon
Anonymous replying to -> #1 1w

Agreed

upvote 16 downvote
default user profile icon
Anonymous replying to -> #3 1w

How does that relate literally at all?

upvote 9 downvote
default user profile icon
Anonymous replying to -> #5 1w

It technically is, but for people who experience this regularly and/or don’t have good insurance, we rlly have to pick our battles

upvote 8 downvote
default user profile icon
Anonymous replying to -> #5 1w

For me personally, blood in urine is at “keep an eye on it” level

upvote 11 downvote
default user profile icon
Anonymous replying to -> #4 1w

imagine seeing a post venting about severe illness & an incompetent / careless doctor and thinking “I know, I should respond by not showing any sympathy for OP and instead attempting to justify the doctor’s negligence!”

upvote 5 downvote
default user profile icon
Anonymous replying to -> #1 1w

That wasn’t my intention. I have empathy, I was just saying the system is broken, and with all the chronic illnesses now, I think there should be more specialties relating to chronic illnesses so people can get the care they need.

upvote -2 downvote
default user profile icon
Anonymous replying to -> #3 1w

I’ll ask again “how does this relate at all?”

upvote 1 downvote
default user profile icon
Anonymous replying to -> #3 1w

you’re replying in a group for chronically ill people—what exactly makes you think anyone else here needs you to explain to them that the system is broken?? we’re all intimately familiar with that fact OP said they’re being ignored, and you’re over here talking like they aren’t Really being ignored because it must simply be that their rheumatologist is overworked. obviously that’s rude & dismissive

upvote 4 downvote
default user profile icon
Anonymous replying to -> #1 1w

I apologize. That was not my intent. I just feel frustrated whenever I’m sent to a rheumatologist because how can they possibly know what I need?

upvote 1 downvote