Anonymous #3 10w

What’s made the biggest difference for you?

1

Anonymous #2 10w

Low dose naltrexone, it’s not a typical POTS med but I saw improvement after I started it for pain and my POTS doc said they do prescribe it sometimes.

3

Anonymous #1 10w

Wait is the neurologist helpful? I’ve been to a neurologist for severe concussions and post concussive syndrome but not since I’ve been diagnosed with pots my cardiologist has been the only one managing that

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Anonymous OP 10w

I’m sure it depends on the individual doctors but my original neurologist (who retired) knew way more about pots than my cardiologist and was the one who originally referred me to get tested. My pots was triggered by a severe concussion which is why I started with a neurologist. If your cardiologist seems knowledgeable I’m not sure there’s anything else a neurologist would do differently.

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Anonymous #1 10w

OMG I literally have asked my doctors so many times if there’s a connection between pots and concussions because I feel like mine was too but I wasn’t diagnosed until recently (about 3 years after my severe concussion) and very time I bring it up they say there’s no research showing that and link it to a virus I had in the fall

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Anonymous OP 10w

My POTS specialist is also a concussion specialist, I’m in Maryland but if you’re in the area or want to travel I can give you her name.

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Anonymous #3 10w

I’m in upstate ny unfortunately:/ but thank you!! What’s her name? Maybe I’ll look into it because post concussive syndrome plus pots has really not been the vibe haha

1