Chronic Illness on Sidechat | Does anyone with POTS that also takes a beta blocker experience the same physical symptoms/sensations as before but check your heart rate and it’s not as high? I feel like I’m going insane

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Chronic Illness 1d

Does anyone with POTS that also takes a beta blocker experience the same physical symptoms/sensations as before but check your heart rate and it’s not as high? I feel like I’m going insane

Anonymous 1d

I take ivabradine which isn’t a beta blocker but I experience the same thing. My heart rate is a lot lower but I still have severe symptoms, lightheaded, dizzy, fatigue, blood pooling, sometimes loss of consciousness, etc. Told the neurologist this and she said “that’s just the nature of the disease” and wouldn’t let me try a different med :(

Anonymous 1d

Yes I have hyperPOTS and I’m on gaunfacine and even though my numbers are better I feel like crap every damn day

Anonymous 1d

Yep, I’m lucky and my doctor treats the symptoms instead of the numbers though

Anonymous 19h

yes!!

Anonymous 2h

Yes I’m on propranolol

Anonymous

#3 18h

What’s made the biggest difference for you?

Anonymous

#2 16h

Low dose naltrexone, it’s not a typical POTS med but I saw improvement after I started it for pain and my POTS doc said they do prescribe it sometimes.