Chronic Illness on Sidechat | Any advice? I’ve been diagnosed with Fibromyalgia about a year ago but since my diagnosis, my symptoms have continued to get worse very quickly and I can hardly make it up the stairs anymore. We’ve played with meds, done PT, yoga, and chiropractor. Help?

Sidechat

Download

Join communities on Sidechat Download

Chronic Illness 11w

Any advice? I’ve been diagnosed with Fibromyalgia about a year ago but since my diagnosis, my symptoms have continued to get worse very quickly and I can hardly make it up the stairs anymore. We’ve played with meds, done PT, yoga, and chiropractor. Help?

Anonymous 10w

Keep track of symptoms and side effect. With trying multiple things at once and it still bring new, trying to differentiate causes if important. PT can be too aggressive, chiropractic can worsen, medications have side effects, etc. if you’re a female, look at your cycle as hormones fluctuate and have an impact. If you’ve been sick and got any infection since, bring it to your doc’s attention it can worsen it.

Anonymous 11w

Honestly, I would recommend getting a second opinion. Idk how you were diagnosed, but it is typically a diagnosis of exclusion. Meaning they should be testing you for a variety of different conditions that can mimic fibromyalgia before settling on that diagnosis. You may have already gone through all of that, which would make this irrelevant, but if you feel it might be something more, listen to yourself.

Anonymous 10w

what is your ferritin?

Anonymous 10w

I’m so sorry, I didn’t read your question correctly to begin with 😂 I had it tested about 2 years ago and was told it looked normal. I suppose it couldn’t hurt to have it done again though lol

Anonymous

#1 11w

But when I’m having bad days, weeks, or months with my pain and fatigue, I have to learn my limits quickly. Like constantly listening to your body and giving yourself more rest when needed

Anonymous

#1 11w

Thank you. I have been considering getting a second opinion because atp my doctor seems to just be throwing drugs at me and hoping it’ll work lol Usually when I’m home in pain days I try to sleep as much as possible

Anonymous

OP 10w

Even if the second option comes to the same conclusion, it can be helpful to have a different perspective.

Anonymous

#2 10w

Ferritin is a blood protein that binds to iron and stores it inside your cells until your body needs it

Anonymous

OP 10w

what is your ferritin level? have you tested it?

Anonymous

OP 10w

my tests were in the normal range but normal range is just a population avg, not optimal levels. i had iron deficiency and it was causing me debilitating fatigue, brain fog, and muscle pain. ferritin should be above 125 but normal range is usually above 20 or 30. anything under 100 is iron deficiency and can cause symptoms

Anonymous

#2 10w

Great, I will definitely be getting tested again. Thank you! 💖

Anonymous

#3 10w

I would also look for a specialist if you aren’t seeing one. As fibro has comorbities and some approaches work better.