Chronic Illness on Sidechat | Any advice? I’ve been diagnosed with Fibromyalgia about a year ago but since my diagnosis, my symptoms have continued to get worse very quickly and I can hardly make it up the stairs anymore. We’ve played with meds, done PT, yoga, and chiropractor. Help?

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Chronic Illness 1d

Any advice? I’ve been diagnosed with Fibromyalgia about a year ago but since my diagnosis, my symptoms have continued to get worse very quickly and I can hardly make it up the stairs anymore. We’ve played with meds, done PT, yoga, and chiropractor. Help?

Anonymous 1d

Honestly, I would recommend getting a second opinion. Idk how you were diagnosed, but it is typically a diagnosis of exclusion. Meaning they should be testing you for a variety of different conditions that can mimic fibromyalgia before settling on that diagnosis. You may have already gone through all of that, which would make this irrelevant, but if you feel it might be something more, listen to yourself.

Anonymous 9h

what is your ferritin?

Anonymous 8h

I’m so sorry, I didn’t read your question correctly to begin with 😂 I had it tested about 2 years ago and was told it looked normal. I suppose it couldn’t hurt to have it done again though lol

Anonymous

#1 1d

But when I’m having bad days, weeks, or months with my pain and fatigue, I have to learn my limits quickly. Like constantly listening to your body and giving yourself more rest when needed

Anonymous

#1 1d

Thank you. I have been considering getting a second opinion because atp my doctor seems to just be throwing drugs at me and hoping it’ll work lol Usually when I’m home in pain days I try to sleep as much as possible

Anonymous

OP 17h

Even if the second option comes to the same conclusion, it can be helpful to have a different perspective.

Anonymous

#2 8h

Ferritin is a blood protein that binds to iron and stores it inside your cells until your body needs it

Anonymous

OP 8h

what is your ferritin level? have you tested it?

Anonymous

OP 8h

my tests were in the normal range but normal range is just a population avg, not optimal levels. i had iron deficiency and it was causing me debilitating fatigue, brain fog, and muscle pain. ferritin should be above 125 but normal range is usually above 20 or 30. anything under 100 is iron deficiency and can cause symptoms

Anonymous

#2 8h

Great, I will definitely be getting tested again. Thank you! 💖