does anyone know how to find an hEDS (and possible other eds types) doctor? i’ve been struggling for years and there really just isn’t any options for the deep south
I know UVA (prob a bit of a hike depending on where you live) will be opening up a EDS clinic late winter. They are currently accepting people to go on the waitlist. All you really have to do is call them.
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Anonymous13w
If you’re on Medicaid, don’t bother. My doctor told me testing would be $5-10k out of pocket, and I’m in Cleveland Clinic territory to boot.
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Anonymous13w
Eds clinic at Mayo Clinic in Florida! Changed my life