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does anyone know how to find an hEDS (and possible other eds types) doctor? i’ve been struggling for years and there really just isn’t any options for the deep south
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Anonymous 3d

I know UVA (prob a bit of a hike depending on where you live) will be opening up a EDS clinic late winter. They are currently accepting people to go on the waitlist. All you really have to do is call them.

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Anonymous 3d

If you’re on Medicaid, don’t bother. My doctor told me testing would be $5-10k out of pocket, and I’m in Cleveland Clinic territory to boot.

upvote 3 downvote
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Anonymous 4d

following 🙏🏻

upvote 1 downvote
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Anonymous 12h

Eds clinic at Mayo Clinic in Florida! Changed my life

upvote 1 downvote