Chronic Illness on Sidechat | Just a little PSA for folks with EDS (and can certainly apply for other conditions) ask your new providers their experience working with EDS, especially anyone doing hands on work. It is too easy for them to unintentionally make it worse

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Chronic Illness 1d

Just a little PSA for folks with EDS (and can certainly apply for other conditions) ask your new providers their experience working with EDS, especially anyone doing hands on work. It is too easy for them to unintentionally make it worse

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Anonymous 1d

People mean well, but recommendations can suck. No matter how much you read up on it and one EDS patient is just one. I like providers with personal experience or at least 3 patients. Obviously hard to find, but an inexperienced provider is worse than going without in my experience.

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