Sidechat icon
Join communities on Sidechat Download
My FTM friend told me his hEDS pain improved after starting testosterone, idk if this is a common experience but that’s kind of awesome.
upvote 25 downvote

default user profile icon
Anonymous 12w

Yeah it’s a common anecdote (I’m not aware of any research on it) my ftm hEDS friend has said the same thing

upvote 7 downvote
default user profile icon
Anonymous 12w

my fibromyalgia improved a bit cause of its muscle-strengthening properties

upvote 4 downvote
default user profile icon
Anonymous 12w

i would actually say it got worse for me sadly

upvote 3 downvote
default user profile icon
Anonymous 11w

idk but the men in my family have it yet i, the only woman, am also the only one disabled by it. it’s pretty commonly accepted that men’s naturally higher muscle mass significantly improves EDS symptoms. that’s my theory on why women are diagnosed so much more. the men just (on average) have less pain/fewer symptoms

upvote 3 downvote
default user profile icon
Anonymous 12w

I have PCOS/PMOS and EDS and when my PCOS/PMOS got "worse" my EDS got better, and every time I try to treat my PCOS/PMOS my EDS gets worse

upvote 2 downvote
default user profile icon
Anonymous 12w

My mysterious joint instability did too!! yay muscle mass increase

upvote 1 downvote
default user profile icon
Anonymous replying to -> #1 12w

okay so i’m not the only one who had this happen, i thought i was crazy 😭

upvote 1 downvote
default user profile icon
Anonymous replying to -> #3 12w

That’s so crazy cause mine did not😅 love seeing how things affect other people

upvote 1 downvote
default user profile icon
Anonymous replying to -> #8 11w

25% of people with EDS are really sensitive to progesterone. The men with EDS in my family have more organ issues like early hernias, organ ruptures, and AFIB as opposed to severe joint pain.

upvote 1 downvote
default user profile icon
Anonymous replying to -> #2 11w

Same

upvote 1 downvote