Chronic Illness on Sidechat | For the first time in my life I finally have literal visible proof that something is wrong and that my pain is real and not just in my head. I have never in my life felt this mixture of more relief and insane fear at the same time.

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Chronic Illness 2d

For the first time in my life I finally have literal visible proof that something is wrong and that my pain is real and not just in my head. I have never in my life felt this mixture of more relief and insane fear at the same time.

Anonymous 2d

Correction: it is in my head💀 I’m just not imagining it

Anonymous 1d

"it's just in your head" is such a bullshit way of thinking. if someone THINKS they have chronic pain all the time or THINKS they feel sick all the time, something is still wrong!! the brain and body are not entirely separate entities!!

Anonymous 1d

spent a year of being told it was psychological until it wasn’t. Severe spinal compression which required emergency surgery. I felt vindicated but wanted to book an appointment to tell the doc that said it’s psychological how wrong they were (in not so nice words)

Anonymous

#1 1d

Yes. Preach. Irony is the issue was in my brain so jokes on them it is in my head and they have no choice but to treat that because it can actually cause permanent damage untreated But beyond that when a person is feeling pain thats serious. And after going to many options &every test coming back normal on a young person; their instinct was always “you know I’m not sure that’s it” and being sent home with ibuprofen was so frustrating and scary just because I knew something was very wrong

Anonymous

OP 1d

And even some people around me including chronically ill people have shared similar energy which honestly was debilitating and felt lonely quite frankly. And thankfully I was able to push for more tests but it terrifies me that many people are in a similar boat but are not as lucky as I am…

Anonymous

#2 1d

Yesyesyes!! I feel so angry at every person that tried to dismiss me and disregard my experiences because of how I expressed them. Like when they go “are you sure you’re not getting headaches from stress” I so badly want to tell them that it actually was brain compression from ventriculomegaly. It would be funny to tell them how much they suck at their job for getting it right but so wrong lol Idk maybe its childish and stupid but I honestly need that reaffirming shock theyll have…