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I keep seeing comments on young disabled children about “quality of life.” I feel like personally quality of life isn’t really about mental or physical capacity, more about the levels of pain you have to live through.
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Anonymous 6d

QoL can also be very very dependent on the social environment you’re in. i went from an inaccessible city where people struggled to accommodate me to, as my condition worsened, a more accessible city where there are more accommodations available and my friends are a lot more understanding and even though my condition is worse, my quality of life is much better because the world is more available to me

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Anonymous 6d

For me Quality of Life is how happy your life can be. Someone can be in a little pain but it’s unbearable and intolerable for them. But someone in immense pain can find ways to cope with that and find joy and love life. I’ve had low pain days with not much QoL and high pain days that were amazing. QoL is purely subjective

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Anonymous 1w

Hopefully this doesn’t come off wrong, just seeing the able-bodied perception on equating quality of life to how much you can perform life like able-bodied people has been making me mad lately

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Anonymous 6d

from my experience it can also be dependent on your environment. i have celiac disease which wouldn’t be so bad if society accommodated people like me but they don’t so we report very low quality of life. that’s not to downplay chronic pain because that also gives you a low quality of life, but sadly it’s not the only thing that can

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