Anonymous #1 1d

I usually LOVE this doctor she’s a sweet old lady and I think she meant well, but I am so fucking depressed. I already have so many things I can’t treat and with the crippling GI pain in the last year I was hoping that was one thing I could actually get under control. But now having had every possible test, scan, and exam except a bacterial overgrowth breath test (which I will BE doing in the next few days) and being told to just treat the lupus, which I am OUT of options for until (1/2)

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Anonymous OP 1d

something like T-Cell therapy comes out, I just feel stuck and infuriated being told I am “Young and healthy and will learn to cope.” I don’t know which fucking part of me is well enough to be deemed healthy so I think what she actually meant is that I am skinny and pretty by traditional standards. Because I am sick out of my gourd and back to square 0 with treatment plans

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Anonymous OP 1d

It’s doctors like her that REALLY need the reality check of what they’re saying and to have that reckoning that THEY are FAILING YOU, not that it’s no longer their problem bc they did what *they* could do. like “absolutely the fuck not you better keep trying, this is YOUR job and you better DO that job. YOU signed up to do hard shit so YOU figure it out bc YOU are the doctor.” i am enraged for you, girl. as a fellow skinny “conventionally pretty” patient (but a POTS girlie), stand your ground.

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Anonymous OP 1d

this lack of treatment and careful management of your health is detrimental to your psychological health and this old lady probably went to medical school so long ago that she barely considers it an issue, when it needs to be made VERY clear to her that she is responsible for the physical health part that maintains the balance of your mental health. if she gives up or slacks off, your mental health is no longer balanced. that’s the same for everyone like us. you’re not at square one. SHE is.

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Anonymous #1 1d

Thank you for your words. Someone else sharing my frustration has made me feel a bit better.

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Anonymous OP 1d

of course!! you deserve that, at the very least. don’t be afraid the be frank about it, but i know it’s hard to think of how you feel and what you want to say about it in the short moments that doctors say weird shit and then leave the room within 5 min.

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Anonymous OP 1d

If it helps you wouldn’t be treated any different if you were obese too. I’m young and “healthy” despite not a single part of my body functioning correctly and being obese

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