it could be as simple as low potassium or migraines

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Tethered cord syndrome caused arm weakness, arm tremors, muscle jerks, migraines, leg tremors after exercise, and altered sensation to my back and butt (among many other things)

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My issues regulating multiple of my electrolytes and when they are low they have all of those symptoms most prominent are neurological and muscle and nerve issues.You may have tried this but getting a full electrolyte panel could help 🤷‍♀️ for me it’s calcium and sodium but many electrolytes behave similarly when low

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This sounds like it could possible be a SPS variant called PERM. I have the same symptoms and it’s what I’m being evaluated for right now.

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My trunk also move back and forth when sitting rhythmically, newest symptom. Any test or diagnosis come to mind? Anything helps

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My potassium is fine and we thought maybe vestibular migraines. But it doesn’t explain all my symptoms and my constant tremors and how they slowly spread to all my limbs

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I have had imaging of my brain and my spine that all came out fine, but all of this was prior to the muscle jerking the tremors. When I got those both done, it was due to back pain and leg weakness as well as migraines.

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I was on like eight different types of medications. I was all propanolol, but I just got off of it. My arm and like weakness started around a year ago and then my migraines tremors like twitching and all that started in October and has been progressing. I’ve been chronically ill for like four years though, and has hit almost every single one of my body systems started with Gastro and back pain and a migraine.

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I then started having cardio symptoms, low iron, and low B12 and then now neurological symptoms, but I still have some Gastro symptoms and I have a rare genetic condition called FAP.

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How do you get checked for long Covid? Also, sorry I don’t know why it isn’t letting me respond to each comment. Also, I’m only 20 years old. And this has been going on since I was 17.

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I don’t really have that much pain with my tremors though it’s more just like feeling uncomfortable or unstable. Do you have pain?

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I’ve done a electrolyte panel and it’s come out fine for the most part. I am iron and B12 deficient and have to get infusions for both, but they don’t know why.

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Possibly spinal instability secondary to EDS. Any shifts in the spinal cord can result in many of the symptoms you described. And when they are subtle (not the symptoms, but the shifts and instability) they don’t show up on ordinary tests. There are tests that can assess it during range of motion.

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