Chronic Illness on Sidechat | Does anyone else get random intense pain in their legs lasting for hours that makes their legs go heavy and limp? It feels like growing pains x10 and It’s so flipping hard to walk, and sleep. I just lie awake and cry tbh

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Chronic Illness 1d

Does anyone else get random intense pain in their legs lasting for hours that makes their legs go heavy and limp? It feels like growing pains x10 and It’s so flipping hard to walk, and sleep. I just lie awake and cry tbh

Anonymous 18h

Yes, omg!! I’ve been having them since I was a kid, and was always told it was just growing pains, but 12 years later and I’m still having them😭

Anonymous 1d

That is not normal, this could be a sign of spinal compression or some other injury

Anonymous 1d

YES oh my god I’ve never heard of anyone else describing this. Mine don’t feel limp but they feel weak and stiff (but they aren’t actually stiff). I started to have it happen in my arms too sometimes

Anonymous

#2 1d

Like I have my typical aches and pain due to my knees being hypermobile. But the burning intense pain that comes on randomly is unbearable. I found compassion sleeves somewhat helpful. But no dr seems to understand what I’m trying to describe

Anonymous

#2 1d

Like they think I’m taking about joint pain (arthritis like stuff) but I’m like no this is a different kind of pain. Last time it happened I could barely walk and was crying with every step. And laid on the couch with compression sleeves, hot pack, cold packs, and an edible, crying until it eventually faded to a tolerable level