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Chronic Illness icon
Chronic Illness 3w
My evil unexplained headaches of doom are returning 🫩 I’m diagnosed with chronic migraines, these headaches are different… and mostly happen in the summer. Haven’t really found anything that helps. I just have to ride them out.
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Anonymous 2w

Hi, I have chiari malformation and get chronic migraines that worsen in the summer specifically due to increased atmospheric activity fucking with my intercranial pressure. If u haven't heard of this condition before pls spend 5 mins google searching it's much more common than doctors know!

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Anonymous 3w

You should post this in the Uninsured Brigade channel and see if anyone has suggestions

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Anonymous replying to -> #2 2w

And only thing that helps me is cervical traction, vestibular exercises and CBD! Im so sorry I wish you the best of luck :(

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Anonymous replying to -> #2 2w

Hey! I’ve looked into IIH and gotten cervical imaging done and haven’t had anything come up through that. Vestibular therapy might be interesting to try! I recently started trying CBD for pain but I haven’t gotten it to a good balance where it actually feels effective yet.

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Anonymous replying to -> OP 2w

I need to schedule a brain mri I have an order just haven’t gotten to it

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Anonymous replying to -> #2 2w

Here too!!!!

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Anonymous replying to -> OP 2w

Doctors are really uneducated about Chiari and I know dozens of people who've gone misdiagnosed for years even after scans showing obvious herniation bc the drs don't know to look for it. U prob don't have it but PLS make sure to do ur due diligence! I don't have clinical IH but my neurosurgeon told me I was likely experiencing flares due to chiari making me extra sensitive to changes in pressure 🫡 & Yes I think VRT is def worth trying, it has a lot of benefits even if it doesn't impact ur pain

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Anonymous replying to -> OP 2w

And again I'm so sorry migraines are evil enough, dealing with them for seemingly no reason is so frustrating!!!

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