there is something wrong, the tests keep ruling things out but not giving any answers to what's wrong which means there's no path to treatment

19

“You’re just a hypochondriac” “you just want something to be wrong so you get attention” NO I WANT AN EXPLANATION FOR WHY IVE LIVED MY WHOLE LIFE WITH CHRONIC PAIN

11

my biggest fear going into my brain mri was that they wouldn’t find anything. and they didn’t

10

No literally. Being disappointed a test was normal is one of the strangest feelings ever. I went 4 years constantly testing with no answers. Obvious symptoms but no root cause, I was losing my mind every time I test came back negative.

7

I think that’s one of the hardest things to explain to a healthy person. My mom struggled to understand my desire for a diagnosis as she didn’t want me defined by my illness. It’s not that I want to be sick – I am sick. But I need the reason. I need the why. It’s not just treatment, it’s planning my life, it’s accepting it, attributing symptoms, lifestyle modifications…

5

I just say I don’t want to be sick but I AM and I can’t get better until they figure out what’s wrong or at least an effective treatment. Don’t stress so much you want them to find something wrong. Stress you want to get better.

4