Chronic Illness on Sidechat | hot take (?) you need to get genetic testing even if you only suspect hEDS (it has no known genetic marker atm). you may fit the dx criteria for hEDS but actually be carrying a vascular variant and it’s super dangerous to not know

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Chronic Illness 53w

hot take (?) you need to get genetic testing even if you only suspect hEDS (it has no known genetic marker atm). you may fit the dx criteria for hEDS but actually be carrying a vascular variant and it’s super dangerous to not know

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Anonymous 53w

Many places won’t test unless you show vascular-specific symptoms, not just anyone with EDS characteristics

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