Chronic Illness on Sidechat | hot take (?) you need to get genetic testing even if you only suspect hEDS (it has no known genetic marker atm). you may fit the dx criteria for hEDS but actually be carrying a vascular variant and it’s super dangerous to not know

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Chronic Illness 14w

hot take (?) you need to get genetic testing even if you only suspect hEDS (it has no known genetic marker atm). you may fit the dx criteria for hEDS but actually be carrying a vascular variant and it’s super dangerous to not know

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Anonymous 14w

Many places won’t test unless you show vascular-specific symptoms, not just anyone with EDS characteristics

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