Chronic Illness on Sidechat | Anyone else with hEDS the first in their family?

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Chronic Illness 2w

Anyone else with hEDS the first in their family?

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Anonymous 2w

thought i was but as we’ve learned more i’ve realized the older people in my family have it too

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Anonymous 2w

Similar to #1. I was the first to be diagnosed but my sister and mom have it too

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Anonymous 2w

I’m in the same boat as you OP

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Anonymous 2w

Yes but I have a genetic mutation, it’s possible that someone like far before me might’ve had it and we would not have known… I’m the only ill person in my family 🫠

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Anonymous 2w

I’m the only one in my immediate family with any sort of symptoms but I have a second cousin who is now looking into it as well

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Anonymous

#1 2w

And they just won’t admit it! Old grouches with their “totally normal aches and pains”

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Anonymous

#4 2w

lmao i couldn’t handle it anymore and had them all do the beighton scale for me at a family dinner by going “hey can any of you do this?” even my 90 year old grandma was still clinically hypermobile 😭

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