I do + it seems to be one of the more common things in this community. I just called my primary office and asked for an appointment with a doctor familiar with EDS and they knew what to do. Some screening, and sent me referrals for the specialists I needed (ortho, gastro, rheumatologist) and a geneticist

7

I have it too! Talked to my PCP about it and got referred to a doctor with more knowledge about EDS. He ran some basic skin & joint tests along with talking to me about my other symptoms before giving my diagnosis & referring me to more specialists. It was a process very similar to #1's comment. Wishing you luck!!!

6

Well crap my pcp is absolutely useless and the healthcare in my area is terrible 😭

1