Chronic Illness on Sidechat | anyone else’s migraines don’t respond to medication? I’ve been on 13 different medications preventative/onset/oral/shots/nose sprays and none of them have been effective

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Chronic Illness 2w

anyone else’s migraines don’t respond to medication? I’ve been on 13 different medications preventative/onset/oral/shots/nose sprays and none of them have been effective

Anonymous 2w

The only one that’s been effective for me is Nurtec

Anonymous 2w

most of them just made me constipated and one gave me seizures. Qulipta worked but I can't get the financial stuff figured out to access it again

Anonymous 2w

i have personally been on over 30+ migraine medications since i was young. i'm currently on emgality as a preventative and nurtec+sprix as an abortive. but the most helpful thing i've found is getting iv magnesium+lidocane infusions

Anonymous 2w

yep. i’m on botox + qulipta + ubrelvy. still in pain every day

Anonymous 2w

Yep constant migraine of 8 years but have had them since I was a kid before they became constant and have never gotten any relief from any migraine med or combination of them. It sucks and tbh idk how I function most days.

Anonymous 2w

Nurtec helped me! I know there is also a shot you can inject in the leg that helps with migraines though I don’t know the name 🥺 my mom takes they and they help her. She typically is out for 4 days when she has migraines so this is a life saver for her

Anonymous

#1 2w

i e tried it sadly it doesn’t budge anything

Anonymous

#2 2w

tried that too, doesn’t work sadly. I hope you can get it for you though! :)

Anonymous

#3 2w

gabapentin was the most effective for me but it just stopped working after years of taking it for some reason

Anonymous

#4 2w

can you tell me more about the botox? i've been on every med under the sun since i was 6 for migraines, nerve blocks etc. but i've been too afraid to try botox but my doctors want me to

Anonymous

#3 2w

yeah! it’s a bunch of injections around your head and neck but they really don’t hurt. for me the worst are by my brows but it’s just a little flinch. i’m a little achy for a few days after. imo there’s no downside to trying it if insurance will cover it. but it can take up to 3 sessions (9months) to actually feel a difference. it doesn’t last all 3 months for me but it’s low maintenance. my insurance covers it no problem because i have also been on every med available. get the coupon for copay

Anonymous

#4 2w

i’ve had no side effects other than a dull headache after. try to avoid blood thinners before you go so you don’t bleed a ton

Anonymous

#4 2w

thank you sm! my doctor just sent in a request for authorization, even if they do authorize it i dont think im going to immediately jump into it(even though i've had many years to think about it) i've just heard some scary stories before

Anonymous

#4 2w

can u still use thc? like gummies? I use it a lot for my migraine pain management and to eat when i get nauseous

Anonymous

OP 2w

no idea but i don’t see why not since botox isn’t really a drug. i’d ask your neurologist

Anonymous

#5 2w

i only had them for a few days one year as a kid but now you’re everyday. i miss the person i used to be 🥲 i think i would give anything to just get through the day again

Anonymous

OP 2w

Totally get that. I miss who I was too. My old favorite activities are now torture for me. You’re not alone and hopefully we both find the right meds for us soon