Chronic Illness on Sidechat | Anyone else struggle with the idea of struggling for the rest of your life? It makes me feel so selfish bc I know people would give anything to live a full life but I just don’t want to spend my life in a doctors office like I have the past 8 years.

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Chronic Illness 1d

Anyone else struggle with the idea of struggling for the rest of your life? It makes me feel so selfish bc I know people would give anything to live a full life but I just don’t want to spend my life in a doctors office like I have the past 8 years.

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Anonymous 1d

I definitely have it “better” than most people but I’m afraid of never being able to fully live independently because of my epilepsy (still having ~40 seizures a year after surgery BUT I was having ~800 seizures before my surgery, so definitely better). If I ever get seizure free long enough to drive i’ll still need to worry about health insurance and doctors forever bc people without any chronic epilepsy assume “no more seizures = no more medication or doctors ever” lol

Anonymous 1d

Also needing treatment for the rest of my life

Anonymous 1d

some songs on Halsey’s album The Great Impersonator kinda helped me put words to this feeling when i didn’t have them before… especially when it comes to potentially having a family and being unable to physically lift or carry my own kid.

Anonymous 4h

i think you also need to let go of that guilt for living a full life. MOST PEOPLE live to at least 70. don’t feel bad for being alive.

Anonymous

#1 1d

I’ll give it a listen, thank you. My go to is usually You Will Be Found by the Dear Evan Hanson cast, it sometimes gives me slivers of hope for a better future.

Anonymous

OP 1d

a lot of these songs were written when she believed she wouldn’t live past 28 with her illness. i’d say these are the best for the chronically ill themes: “The End” “I Believe In Magic” *sobs* “Darwinism”