Sidechat icon
Join communities on Sidechat Download
So I have Crohn’s disease and I have had so many issues over the last 2 years. Am I crazy or are they gaslighting me right now by saying that having a level that low is normal? And that it decreasing that much over 6 years is ok?
25 upvotes, 6 comments. Sidechat image post by Anonymous in Chronic Illness. "So I have Crohn’s disease and I have had so many issues over the last 2 years. Am I crazy or are they gaslighting me right now by saying that having a level that low is normal? And that it decreasing that much over 6 years is ok?"
upvote 25 downvote

default user profile icon
Anonymous 19h

I’m no medical professional, but Google seems to suggest that while anything over 200 pg/ml is technically in the “healthy” range, the threshold for people with Crohn’s is generally 300 pg/ml instead due to malabsorption issues. so I think it makes sense that you might be feeling worse with those levels even though you’re *near* the threshold

upvote 5 downvote
🫡
Anonymous 15h

Honestly it probably wouldn’t hurt either way to take a B12 vitamin, obvs double check with your doctor tho

upvote 4 downvote
default user profile icon
Anonymous 9h

that’s not normal. optimal b12 is 800-1000pg/ml. if you have neurological symptoms of b12 deficiency you need injections asap. i would also get your vitamin d, folate, and ferritin checked plus an iron panel, CBC, and CMP.

post
upvote 4 downvote
default user profile icon
Anonymous 2h

I would 100% go see a GI doc and ontop of that if they’re dismissive please look into seeing a board certified naturopathic doctor, I started seeing one for my CD and it went away. 17 years of having it since a kiddo and it went away after 2-3 months of treatment, homeopathy and the correct testing. Not saying ur GI doc is wrong but the ND will be extremely open to testing everything in depth on you

upvote 3 downvote
default user profile icon
Anonymous 5h

oh fuck no. that decline is scary

upvote 1 downvote
default user profile icon
Anonymous replying to -> #1 19h

also, this is just a Google summary so please take it with a grain of salt and try to independently verify any of these claims before internalizing them as fact, But: I would figure this info also supports what you were saying about the rate at which your B12 levels declined

post
upvote 6 downvote