Chronic Illness on Sidechat | So I have Crohn’s disease and I have had so many issues over the last 2 years. Am I crazy or are they gaslighting me right now by saying that having a level that low is normal? And that it decreasing that much over 6 years is ok?

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Chronic Illness 8w

So I have Crohn’s disease and I have had so many issues over the last 2 years. Am I crazy or are they gaslighting me right now by saying that having a level that low is normal? And that it decreasing that much over 6 years is ok?

27 upvotes, 14 comments. Sidechat image post by Anonymous in Chronic Illness. "So I have Crohn’s disease and I have had so many issues over the last 2 years. Am I crazy or are they gaslighting me right now by saying that having a level that low is normal? And that it decreasing that much over 6 years is ok?"

Anonymous 8w

I’m no medical professional, but Google seems to suggest that while anything over 200 pg/ml is technically in the “healthy” range, the threshold for people with Crohn’s is generally 300 pg/ml instead due to malabsorption issues. so I think it makes sense that you might be feeling worse with those levels even though you’re *near* the threshold

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Anonymous 8w

Honestly it probably wouldn’t hurt either way to take a B12 vitamin, obvs double check with your doctor tho

Anonymous 8w

that’s not normal. optimal b12 is 800-1000pg/ml. if you have neurological symptoms of b12 deficiency you need injections asap. i would also get your vitamin d, folate, and ferritin checked plus an iron panel, CBC, and CMP.

Anonymous 8w

oh fuck no. that decline is scary

Anonymous 8w

I would 100% go see a GI doc and ontop of that if they’re dismissive please look into seeing a board certified naturopathic doctor, I started seeing one for my CD and it went away. 17 years of having it since a kiddo and it went away after 2-3 months of treatment, homeopathy and the correct testing. Not saying ur GI doc is wrong but the ND will be extremely open to testing everything in depth on you

Anonymous 7w

It’s not normal but it is *common* it’s pretty easy to supplement if you aren’t already

Anonymous

#1 8w

also, this is just a Google summary so please take it with a grain of salt and try to independently verify any of these claims before internalizing them as fact, But: I would figure this info also supports what you were saying about the rate at which your B12 levels declined

Anonymous

#5 8w

back up—naturopathy or homeopathy? cause those are two very different things, and the latter is pseudoscience. also, no offense, but don’t you figure someone in treatment for Crohn’s is most likely already seeing a gastroenterologist?

Anonymous

#5 8w

to show that I’m not just being a hater—excerpt from a piece examining the history of homeopathy (https://www.mcgill.ca/oss/article/medical-pseudoscience/homeopathy-scientifically-implausible) its two core defining principles are largely nonsensical / not at all applicable to the majority of health issues humans deal with

Anonymous

#1 8w

Hi! Integ therapy works amazing for CD and other chronic diseases, ND’s can prescribe reg pharma meds etc as well if needed, but things like botanical tinctures, etc and more and other therapies that help. I also don’t want to assume someone actively has a GI doc still with CD. I stopped seeing mine bc they were dismissive. I had went to over 15 diff GI doc’s all extremely horrible. I had had enough and needed help. ND’s will sit with you for hours and get down to the root cause whatever it is

Anonymous

#1 8w

Also obviously not every treatment works for everyone. Doesn’t matter if it’s allopathy or naturopathy, everyone is diff, and majority of not all allopathic doctors treat patients that way and could give a rats ass less of a fuk and it’s really frustrating :(((

Anonymous

#5 8w

again, holistic medicine and homeopathy are two very different things. please read the link I shared and/or look into this yourself so as to avoid confusing the two. you could do a massive disservice to another chronically ill person by accidentally suggesting homeopathy to others when what you intended to recommend was actually naturopathy

Anonymous

#5 8w

I genuinely don’t have any beef with naturopathy, I think it’s a perfectly great thing to not limit your health practices to the domain of mainstream western medical clinics / to seek earth-based medicines rather than synthetically-formulated pharmaceuticals if that’s what works for you

Anonymous

#5 8w

and sorry, I think my comment about already seeing a gastroenterologist came out unnecessarily snarky, it just struck me as kind of condescending to instruct someone with diagnosed Crohn’s to go see a GI doc as if that simply hadn’t occurred to them