Chronic Illness on Sidechat | I’d love to see a study looking at whether people with early onset or from-birth disabilities and chronic illnesses may feel better about their circumstances than those who develop them later. Not generalizing- just a personal experience guess.

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Chronic Illness 1d

I’d love to see a study looking at whether people with early onset or from-birth disabilities and chronic illnesses may feel better about their circumstances than those who develop them later. Not generalizing- just a personal experience guess.

Anonymous 1d

To clarify: I’m not saying I think it is true, I would love people to share their thoughts, I don’t have a strong opinion—I’m just curious if it’s been looked at. I think pain specific issues may be similar across the two categories but maybe mobility issues for example might follow this pattern.

Anonymous 1d

I think it also very well could be outward presentation making early onset people seem that way as a result of just having more time to process/cope/etc. versus it being timing specifically.

Anonymous 17h

my personal experience yes, was disabled from birth, diagnosed at 4. it was just life. got “cured” in 2024, experienced what it was like to be “healthy” for a couple months. got covid and then me/cfs. waaaaaay worse to be disabled but to remember what functional felt like than to have never experienced it at all

Anonymous 15h

Before i was exposed to the chronically ill community disability felt like this catastrophic thing that happens to people either from birth or from an accident/old age, but there was very little perspective in my life about how to live with it and it seemed very impossible - once my illness got significantly worse a year ago and my capabilities were almost fully shot I thought that was it for the good part of my life; that was till I tried connecting with other people and communities (1/?)

Anonymous

#1 17h

i say “cured” bc technically i’m in surgical remission, and “healthy” bc i have/had other conditions

Anonymous

#2 15h

Of people with chronic illnesses/disabilities, and my perspective fully shifted. I reflected on what it actually meant for me, and I realized how much it changed for me, and that is with how I reason with people and how I treat people around me, I started caring for people more, feeling stronger, gave me more compassion and love, allowed me to notice a lot more than I did before. And I have talked with people with disabilities more severe than mine when I was healthier, and I feel like(2/3)

Anonymous

#2 15h

Although they gave me a perspective way brighter than what I imagined, that did not resonate with me till now. I’m glad I got this perspective because it showed me how prioritizing strength, potential, and achievement is flawed and not always the most important, it showed me how to better be present for the people around me and how to do right by myself my people. I’m glad these communities exist and allow us to find the positive things in the ways our bodies work. (3/3)