Chronic Illness on Sidechat | I need advice from people with dysautnomia or POTS. I rarely have had a history of headaches and I had this massive mind numbing headache and it hasn’t died down and I’m worried it could be something else or related has anyone had this happen?

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Chronic Illness 3w

I need advice from people with dysautnomia or POTS. I rarely have had a history of headaches and I had this massive mind numbing headache and it hasn’t died down and I’m worried it could be something else or related has anyone had this happen?

Anonymous 2w

I would ask to get brain and spinal scans…

Anonymous 3w

Migraine queen.

🐶

Anonymous 3w

I’m not sure if this is related to your POTS or not but I do the following when I get migraines: - drink lots of electrolytes - take excedrine - turn all the lights off and get into bed with a cold compress on my head If it gets really bad, I will get into the shower. The only downside to that is I’ll usually vomit in the shower and that’s pretty gross.

Anonymous

#1 3w

I’ve never had one before I can’t believe people experience this daily. It’s horrible.

Anonymous

OP 3w

They really are awful and can be scary if you haven’t had them before or if they’re really bad. I’ve had chronic migraines since high school. They aren’t always mind splitting pain. Most of the time mine are mild, but it’s almost every day.

Anonymous

#1 3w

Danng that terrible☹️

Anonymous

#1 3w

Same

Anonymous

#4 2w

I got an appointment with a neurologist!🙌