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Anyone diagnosed with hEDS have advice for getting diagnosed? I feel like I am too young to be believed and I am trying to schedule with a rheumatologist and I’m scared 💔
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Anonymous 5w

practice your answers to the diagnostic criteria available online, it's easy to rush during the actual appointment and miss something. ask family & longtime friends if they have any relevant info. wear clothes that are comfortable but either tight like leggings or show skin like shorts and short sleeves, I wore sweatpants that didn't roll up enough for the dr to see my knees going backwards (i still hit enough of the beighton for a diagnosis but they couldn't mark the knees as backwards)

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Anonymous replying to -> #1 5w

Yeah I scored 6/9 💀 I’m double jointed asf I thought everyone’s elbow bent a lil extra till I asked my roommate to compare lol

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Anonymous replying to -> #1 5w

And ty for the leggings point I wouldn’t have thought about that

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